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| Author: |
Rich, Michael; Polvinen, Julie; Patashnick, Jennifer L.
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| Year: |
2005 |
| Article Title: |
Visual narratives of the pediatric illness experience: Children communicating with clinicians through video |
| Journal: |
Child and Adolescent Psychiatric Clinics of North America |
| Volume: |
14 |
| Edition: |
3 |
| Issue: |
14 |
| Pages: |
571-587 |
| ISBN/ISSN: |
1056-4993 |
| Source of Funding: |
Arthur Vining Davis Foundations; Deborah Munroe Noonan Memorial Fund; John W. Alden Trust; William F. Milton Fund; Leadership Education in Adolescent Health, Department of Health and Human Resources Maternal and Child Health Bureau project 5T71MC0000912; National Institute of Child Health and Human Development grant K23HD1296 (Rich) |
| Study Design: |
Qualitative Study
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| Publication Type: |
Journal Article |
| Age Group: |
Childhood (birth-12 yrs) |
| URL: |
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| Abstract: |
Objective: To examine the use of Video Intervention/Prevention Assessment (VIA) as a multi-dimensional, flexible, and patient-centered approach for understanding the pediatric illness experience.
Design: Overview of VIA methodology, a process in which youth with chronic illnesses create visual illness narratives (VIN) of their experiences of illness, health, and health care.
Subjects and Setting: N/A
Intervention(s): N/A
Outcome Measure(s): N/A
Results: VIA is used as a tool to better understand a patient's experience with chronic disease "from the inside out," by allowing patients to document their personal experiences with illness via video-camera recording equipment over the course of 12-16 weeks. Studies are conducted in collaboration with a condition-specific specialty clinic, and participants must meet the diagnostic criteria of the condition and are representative of the population affected. Field coordinators provide suggestions for documentation techniques, such as interviews with family members, video diaries, and house tours. The completed narrative is analyzed by a multidisciplinary team that provides both objective and subjective observations and identifies relevant themes. Participants in VIA studies have demonstrated significant improvements in their quality of life.
Conclusion: VIA is an effective method for documenting the patient experience with illness and allows younger patients to become active partners in the treatment of their chronic disease. © Center on Media and Child Health |
| Keywords: |
Adolescent Attitudes
Adolescent Development
Adolescents
Anthropology
Behavior
Chronic Illness
Communications
Community
Coping Behavior
Emotions
Empowerment
Families and Family Life
Health
Health Behavior
Health Care
Interpersonal Communication
Interventions
Media Production
Medical Treatment
Patients
Pediatrics
Physician's Role
Physicians
Psychology
Public Health
Quality of life
Self Esteem
Self Perception
Social Development
Social Factors
Video Cameras
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